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Sunday, April 13, 2014

Bless you.


Six-year-old girl Molly Bent compiles
'bucket list' of things to see before she
goes blind
Molly Bent was diagnosed with
retinitis pigmentosa a year ago
Molly Bent wants to see London and a
safari park
By ANTONIA MOLLOY
Sunday 13 April 2014
A six-year-old girl suffering from a
genetic degenerative eye disease has
compiled a “bucket list” of things she
wants to see before she goes blind.
Molly Bent, from Manchester, was born
with normal eyesight, but was diagnosed
with retinitis pigmentosa a year ago. The
condition, for which there is no cure,
causes progressive vision loss.
Her parents Eve and Chris first noticed
Molly was having trouble with her sight
when she began struggling to read her
homework or watch television after
starting primary school.
‘‘Although my brother has the condition
and several uncles have had it, I never
thought Molly could have inherited it
because we were always told that only
boys could get it,’’ Eve told The Telegraph .
“When we got the diagnosis it was a big
shock. We don't know exactly when Molly
will go blind but it feels as though her
sight deteriorates every time we go to the
opticians.
“She now can't see out of the sides of her
eyes and recently she told us that
everybody standing far away looks like
'fuzzy teddy bears.’ Molly also has night
blindness, so she can hardly see in low
lights and she falls over quite a lot.’’
The couple’s two other children –
Charlotte, 5, and 2-year-old Samuel – do
not suffer from the disease but, because it
is hereditary, they are tested every three
to six months for signs of degenerating
vision.
‘‘There is still a chance that I could have
three blind children and that terrifies
me,” said Eve.
But she said Molly’s siblings were coping
well with their sister’s illness and that the
family was working together to help Molly
take in as much as possible before her
eyes get “too poorly”.
“We just want to help her create as many
magical memories as we possibly can,”
Eve said.
“Molly has a list as long as her arm of
things she wants to see. She wants to visit
London, Australia and Egypt to see the
pyramids. I know I won't be able to give
her half of that but I can try.”
The family have set up a fundraising page
called Making Molly's Memories , which
has so far raised over £34,000.
In a post published on the page on
Sunday, Eve wrote: “Words cannot begin
to describe how amazed and grateful we
are by all the wonderful donations and
offers of help. We know a lot of you have
sent messages and we intend to get back
to everybody, but as you can probably
understand it has been a busy few days!
“What started off as some small local
fundraising to help our baby girl has
become news across the globe and we are
so thankful and indebted to you for your
support. Every penny helps to get our
little girl closer to seeing her dreams and
taking her to places we never dreamed
we would be able to get to.
"Thank you from the bottom of our
hearts. Eve and Chris xxxx.”
Molly’s bucket list:
Disney
London
See the Queen’s palace
Natural History Museum
Blackpool
Scotland
Aquarium
Safari park
Legoland
Beach
Museums
Theatre trips
Concerts
Australia
Football match

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